Stop press

On 18 October 2006, the first parents’ meeting took place at the Metabolic Centre of the Paediatric Hospital of Salzburg.

The initial concerns of the self-help forum are:

supporting uniform financing by health insurance companies
supporting the hospital’s research activities
the possibility of getting to know affected families
the exchange of information regarding ketogenic diets

The contact person for the “pyruvate dehydrogenase deficiency” self-help group is Mr. Fux who has already founded an association.

Requested agenda items for a further meeting, provisionally in Summer 2007, are:
Patient groups - organised according to diagnosis
Presentation on ketogenic diets
Presentation on causes of mitochondrial disorders